It’s happening

3 Jul

Well I was planning to blog today about something else but things have changed. Our surgeon came in this morning at 7:30 and woke me up to tell me that he’s decided to move Turtle’s surgery up to NEXT THURSDAY. It was supposed to be July 26th but he feels she’s growing and doing so well that those two extra weeks of waiting won’t be necessary.

As I said on Facebook, I am simultaneously excited and freaking out. I have been looking forward to this surgery with a strong mixture of hopeful anticipation and utter dread. My husband, the pragmatist, doesn’t get it. Is it a mama thing or what? My heart is just wailing, they’re gonna cut my baby open.

He says, but it’s necessary, they have to, she’s broken. I know this, logically, of course. She literally cannot live like this forever. Her bowels are broken. She cannot process food and absorb nutrition. You can only be on parenteral nutrition for so long before your liver is damaged.

I know this. But I just think of them wheeling her alone into surgery, without me. Of them messing with her consciousness and putting her to sleep. Of her tiny, precious body lying vulnerable on the table. Of the scalpel cutting across her entire belly.

Will she feel alone? Before they put her under, will they comfort her, talk sweetly to her? And how will I cope during those four to eight hours? I can’t even imagine what I will do with myself. Sit catatonic in the massive surgical waiting room here? Pace manically? What will she look like when she comes out of surgery? Will she be sedated? Will they take all her pain away? Will she be scared when she finally wakes up? Will she be swollen?

These are the real mama questions I want to ask but with the surgeons we have to ask the logical questions, not the emotional ones.

I know they’re experts, the best in the world. I know she’s a champ. These platitudes only help a little. What helps is thinking of this as a necessary step, a big leap forward, toward going home. Toward our real life. THIS is all not real. We don’t live in a hospital. I don’t have a nurse call button or an endless supply of supplies or people coming in to take vitals or an IV pump or a fold out chair for a bed in real life.

Very soon I won’t have a baby with an NG tube and a central line and all these things coming out of her that we need to be extra careful about. Soon she’ll only wear mittens so she doesn’t scratch herself, not so she doesn’t yank her tube out of her nose, or worse the central line or G-Tube that are stitched to her. Soon I’ll be able to pick her up and WALK AROUND. Without a nurse disconnecting her from things. I’ll just scoop her up and hold her any way I want.

We have a beautiful, real life waiting for us out there and the wait just got a little bit shorter. That’s the only thing that helps me cope with the fear. I wonder if it’s somehow connected to our infertility and loss as well. The feeling that I could still lose her. That this is so good it could possibly just be a dream. I know I won’t lose her. I know she’s here forever now. But that extra layer of irrational fear haunts me. IF’s parting gift perhaps.

So she’ll be in surgery next Thursday. Please mark your calendars and think good thoughts for our girl that day, all day long. After surgery she’ll likely go back to the NICU for a few days for the early part of the recovery. This is better because she’ll be under the close watch of the most experienced of nurses, but it means we’ll give up our private room on this floor. This room has really become home and I will miss it. When we get back to this floor, who knows where we’ll go. Hopefully we’ll still be able to arrange to both sleep here. When she’s in the NICU, we can’t sleep there. We can be there, anytime we want, but there’s no way to sleep there. They have rooms somewhere in the hospital for NICU parents but they go quick and they often run out of availability.

Eventually though we’ll come back to this floor and the real work of beginning feeds will start. She may have to have an ostomy and a third surgery, depending on what they see when they get in there. Our hope is that they will be able to repair the blockages and reconnect her bowels next Thursday. If they can’t, this ostomy plan will go into place and will likely delay our homecoming by about two months. If that happens, I very well may have to quit my job, as I can’t in any way fathom going back to work while she’s still in here. And frankly, even after she gets out, I want some time with her at home. I feel I deserve it. I feel cheated out of my maternity leave. Maybe that’s wrong to feel, but I do. Which of these scenarios we’re looking at will be a lot clearer after she gets out of surgery.

After she gets out of surgery next Thursday. Next Thursday. Holy shit. My baby.

If I don’t blog before next week, please keep us in your thoughts and I’ll try to come back as soon as possible with an update on her condition, even if it’s just a few lines.

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18 Responses to “It’s happening”

  1. Mo July 3, 2013 at 4:20 pm #

    I know you’re scared, but just keep on remembering that this is fantastic news. It means she’s strong, and it brings you two weeks closer to bringing her home. She’s totally going to rock it. She’s her mommy’s daughter.
    xoxo

  2. nonsequiturchican July 3, 2013 at 5:10 pm #

    I know this is really scary, but the fact that they moved up the surgery is great news! They think that she is strong enough to handle the surgery two weeks earlier. And hopefully that means you can have her HOME two weeks earlier. I’ll be thinking good surgery thoughts for her next Thursday!

  3. Kristin July 3, 2013 at 7:06 pm #

    Really scary, but really wonderful news! I’m glad she is doing so well. I will be thinking of the three of you this next week.

  4. expectantmummy July 3, 2013 at 10:05 pm #

    Myself and hubby will keep you in our prayers and thoughts xxxx

  5. Jenn July 4, 2013 at 12:51 am #

    oh my gosh, I just found your blog and I’m catching up. I’m keeping you and your little one in my thoughts and prayers.

  6. Kate @ Infertile First Mom July 4, 2013 at 2:14 am #

    You will be in my thoughts all week- especially Thursday. Looking so forward to the day when you get to take your baby girl home! You’ll get there:)

  7. Trisha July 4, 2013 at 4:20 am #

    I’ll be praying for you and your sweet girl. Be strong Shelly! You can do this!

  8. Alicia July 4, 2013 at 4:24 am #

    Thinking of you guys over the coming week. This is great news. This is scary news. You can do this. Turtle can do this. You’ll be there for each other through it all. Take care over the coming days. Hugs.

  9. Amanda (readingeachpage.blogspot.com) July 5, 2013 at 2:41 am #

    I’s glad she is doing so well they are moving up the surgery. I know it’s scary to think of this happening to your child and I will keep her and you in my thoughts this week.

  10. Amy July 6, 2013 at 2:01 am #

    So it’s on 7/11, right? I’m not really superstitious, but that sounds like a definite good luck omen! I will be thinking of you and rooting like hell for Turtle.

    • Shelley July 6, 2013 at 3:16 am #

      I agree! My birthday is 6/11 and 11 has always been my lucky number. Also, both me and Turtle’s birth weights were 7 lb 11 oz. If I chose the date myself, I wouldve picked the 11 th!

  11. JM July 10, 2013 at 3:13 pm #

    I cannot imagine how scary all this is for you. PLase keep positive thoughts and all the strenght you can gather and you will receive good news on Thursday. I will be thinking of you, Turtle and your family. You guys can do this!

  12. Karaleen July 11, 2013 at 4:49 pm #

    Praying for you and Turtle today. Hang in there mama. I know this is so very hard.
    kd

  13. Alicia July 11, 2013 at 5:46 pm #

    Thinking of your little family today!

  14. Lisa July 11, 2013 at 8:58 pm #

    Thinking of you today and hoping for a smooth, uneventful surgery for Turtle.

  15. Tamika July 11, 2013 at 9:10 pm #

    Saying prayers and sending positive energy today, more than ever. Love, peace, good health and fast healing!

  16. Haley July 22, 2013 at 4:08 am #

    Thinking of you.

  17. Kristin July 25, 2013 at 6:36 pm #

    I’ve been thinking of you and hope all went well with the surgery!!

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